My brother was paralyzed in October 2023. We got him home from the hospital (in Texas, when we live in Iowa) in a clunky old hospital chair. He hated it. He was scared and angry and in pain and his life had just changed forever and he couldnāt do anything for himself in that wheelchair. His first goal (aside from learning how to transfer) was to get a wheelchair. My family was lucky enough to afford one so we thought it would be easy enough. Nope.
We couldnāt buy him a wheelchair. He needed a prescription. For a wheelchair. A doctor had to examine him and declare him in need of a wheelchair. It wasnāt good enough that he had scans and tests showing tumors cutting off his spinal cord. He needed his primary care doctor to examine him during a physical and write a prescription. He was making 2-4 transfers a day, tops. He had no energy to get to a doctor. Home health was in and out every day. He had no time to get to a doctor. He didnāt get a prescription for almost a month. Then it had to go through insurance.
We asked if we could skip insurance and just buy a wheelchair for him. Nope. They wouldnāt sell us one, not even at full sticker price. It needed to be approved by Medicare. We ordered a wheelchair, a nice one, a good shade of green, sporty, small. It would let him move around the house. He would be able to cook, to reach drawers and get stuff from the fridge and brush his teeth and put his contacts in at a sink. We were told it would take awhile, maybe two months. Silently we all hoped he would be around to see two more months.
He went on hospice care on a Saturday in March. On Monday, I was calling his friends to come see him before he died. I got a call on his phone. It was the wheelchair company. They were about to order his wheelchair, she said, but there was an issue with insuranceā had he stopped being covered by Medicare? Well, yes. When he started hospice care, he got kicked off Medicare. The very nice woman I talked to told me to call her if he resumed Medicare coverage so she could order his wheelchair. He died less than 12 hours later.
We ordered that chair for him in early December. Medicare didnāt approve the order until March. He was dead before they got around to it. He wanted that fucking wheelchair so badly. The only reason he had any semblance of independence and any quality of life for the last five months of his life was because the wheelchair company lent him an old beater chair, a very used model of the chair he ordered. If I could go back and change one thing about his end-of-life, I would get him his dream wheelchair. He told me again and again he couldnāt wait to get it, so that he could feel like a person again. He made the best of what he had with that old beater chair, but it still makes me mad to this day. He was paralyzed. He needed a chair that afforded him dignity. We had the money for it. And yet, we were left waiting for five months, for a chair that wouldnāt even get ordered until the day he died.
my friend and i were going to study a language together and wound up having to cancel our plans due to scheduling pressures, but! through research we came across a really cool resource for reading in a TON of languages: bloom library!
as you can see, it has a lot of books for languages that are usually a bit harder to find materials forāwe were going to use it for kyrgyz, for example, which has over 1000 books, which was really hard to find textbook materials for otherwise. as you can see it also has books with audio options, which would be really useful for pronunciation checking. as far as i can tell, everything on the site is free as well.
This evening, my children fell asleep hungry because there was no proper food for them. We also walked for three hours to save drinking water. The place was inhumane and the water was polluted, but there was no other choice. Please help me cover travel costs for me and my family. War life is very tiring, especially my children who suffer every day due to lack of food, medicine and hospitals. Please keep sharing and donating as much as you can, every $5 can help us escape to a safe place and start a new life.
This evening, my children fell asleep hungry because there was no proper food for them. We also walked for three hours to save drinking water. The place was inhumane and the water was polluted, but there was no other choice. Please help me cover travel costs for me and my family. War life is very tiring, especially my children who suffer every day due to lack of food, medicine and hospitals. Please keep sharing and donating as much as you can, every $5 can help us escape to a safe place and start a new life.
The food consists of unhealthy expired cheese and overcooked canned foods that are not suitable for cooking.
doing a boring and monotonous task with no one around to talk to? try infodumping to yourself while youāre doing it in order to make it go faster! (<- girl who just spent 45 mins talking to herself in an empty garage about the transition from household/barter economies to capitalism and its effects on kinship relations)
How do I politely tell people that they need hobbies that don't involve the internet or activism?
Start a garden. Get into birdwatching. Join a diamond painting group. Join a book club. Learn how to embroider. Take a pottery class.
Just. Anything that doesn't involve constant arguments about theory and praxis. Interact with people who are outside of your immediate friend group. Shove your hands into some dirt. Create something just for yourself.
damā¦ā¦.. that website āyou feel like shitā (itās like a questionnaire / troubleshooting guide for when you feel like shit) really worksā¦ā¦ā¦ā¦ā¦ā¦ā¦.. im not even all the way thru it and i even half-assed a lot of the suggestions and i already feel loads better
Let's keep in mind the horrifying reality that way more than 35,000 Palestinians have been murdered by Israel. That's just a total of deaths directly from bombs, etc. There's deaths from intentional starvation, succumbing to injuries and other medical emergencies because of destruction of hospitals, and so on and so forth.