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#invisible illness
fibro-memes · 2 days
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f4nt4smin0 · 2 days
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This makes so much sense
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sunnywalnut · 8 months
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Local PSA: invisible disability does NOT mean you can live your life like a "normal person" invisible disability meant that if a stranger looks at you in public they wouldn't know what's going on.
Like if a wheelchair user were to decide to run into a corner store to grab a candy bar because they know that their legs can last that long without, the cashier wouldn't know.
Or someone with "mild" scoliosis walking upright through their shoulder leans slightly to the left. Maybe they just have bad posture. The lady in the next isle thinks to herself.
The person with EDS or POTS or whatever sort of condition wearing compression gloves out and about. Perhaps it's a fashion statement?
Or what about the people with intestinal issues? They can look like "normal people" too.
You never know what someone is going through.
You never know what they might need to survive or if they're on the edge of a flare up or even if they are currently going through one just by one look.
I think both disabled and non disabled need to realize this. You're not "no longer disabled" because you can "live without" disability aids. They're there to help you. To make your life easier. If living without a cane is going to make it more likely you'll fall over and hurt yourself, use the cane.
If you need to sit down to do dishes or cut vegetables because you need to save your legs for taking out the trash, sit down.
If you need a shower chair because you don't know if you'll pass out, use the shower chair.
People are going to judge you regardless for multiple reasons out of your control.
I'd rather they judge you while you're being safe.
You don't need to struggle to be "normal."
You can just be you.
However that looks for you.
Use your disability aids.
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tumble-tv · 8 months
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"kill them with kindness" WRONG run them over in your wheelchair 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽 👨‍🦼 👩‍🦼 🧑‍🦼 👨‍🦽 👩‍🦽 🧑‍🦽
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Something I want able bodied people to understand is that I don't want a diagnosis cause I wanna be sick so bad; I want a diagnosis because there is already something wrong with my body but I don't know what the fuck it is.
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dear parents, if your child has "seemed fine this entire time" but is now seeking out diagnoses, mobility aids, medical help, more doctors, and is sharing their pain more. do not fucking shut them down? even if it ends up being nothing, showing them that support through all of that will seriously help them. if it ends up being something and you're a bitch to them, the joke will be on you and that strain on your relationship will never go away because. you didn't listen.
listen to kids. we tell you what we need, it's not that hard.
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pixieverse-icedtea · 1 year
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hot girl summer but its me taking care of my emotional health, spending time under the sun, reading more, finding new things that make me happy, doing things that bring out good versions of myself
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thequietesthing · 1 month
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the incredible harsh quiet revelation that you have when you are diagnosed with chronic illness(es) is that you will never be healthy again. I don't think able bodied people are able to understand what it means to just resign to the fact that your life is not just yours anymore. you share it with a weight that will be with you until you are gone from this world.
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gabbagepatch · 3 months
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Listen guys, you don't need to look nice to go outside. Your health is more important than appearances.
I just went on a walk in my pajamas, greasy hair in a shitty bun, acne, and a pair of new balance sneakers. Cars passed by and I said hi to everyone who passed. Did I feel self-conscious? Of course, but it was worth it.
Now I feel a lot better, because I didn't A. Overextend by forcing myself to shower/get dressed/put on concealer beforehand or B. Avoid doing anything because I felt like a mess.
Go outside and be however you are. It's not your job to look good to random strangers, you deserve to go outside.
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fibro-memes · 3 days
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Gentle reminder that your disability and/or chronic illness struggles are valid, even if others have it worse. It’s not like there’s one definitive Most Disabled Person In The World and they’re the only one entitled to accommodations or reactive emotions. That’s not how it works <3
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Sometimes best isn’t always possible
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hoothootmotherf-ckers · 2 months
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the hardest thing about chronic pain to me is how it makes me doubt my own brain.
I have chronic pain. specifically chronic migraines. and the hard thing about that, or neurological pain in general, or really just so fucking many different chronic pain conditions, is there is no proof.
there's no scan a doctor can do to show my pain level or symptoms. you can't look at my head and go "huh, looks fucked up, probably a 8/10 pain." absolutely everything I experience, in order to be understood by a medical professional or even just anyone really, has to be self-recognized and self reported.
and that requires so many steps and levels of trust. like just to fucking start, I have to be aware that the invisible thing I am experiencing is not a thing everyone feels! which again, fucking invisible! Then I have to be aware it's happening at all, which sounds basic but with chronic shit is not. I had to explain to a doctor this week that I do not know if I ever experience "normal" or low-level headaches, because I'm so used to severe migraines that anything below that doesn't register. Sometimes it even takes hours for me to notice I'm having a migraine!
and then I have to be able to assess my own pain, judge how bad it really is, when after nine fucking years my scale is goddamn broken. and the longer I've had a migraine, the further out of whack it goes. I have to recognize and categorize my symptoms, one of which is fucking brain fog, and I have to communicate these very nebulous and abstract concepts to other people.
And then. And then they have to actually believe me. I have to convince them I'm not lying, I'm not looking for attention or drugs or pity or excuses. with zero hard proof, just my words. and then it cycles, because if people doubt my pain, I start to doubt my own experiences. I start to think I'm being a wimp, I'm faking it, I can try harder. so then I downplay it, so then I think it's fine, so I push through it, and this works great until I am fully fucking incapacitated.
and then people are shocked and surprised because I "look healthy."
it has taken fucking years for me to accept that what I am experiencing is real and people who doubt me can go fuck themselves. and it's still very much a work in progress. every single day.
but my pain is real. and so is yours. and people who doubt us can, to reiterate, go fuck themselves.
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my-illness-and-me · 6 months
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omg. in a shocking turn of events, my disability is actually disabling me and my chronic illness is actually making me ill chronically.
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johnnyiscaged · 3 months
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ily disabled people
ily disabled people who are dependent on aids
ily disabled people who are too scared to use aids
ily disabled people who have been bullied out of using aids
ily disabled people who feel like they don't need many aids or any at all
ily loud disabled people
ily quiet & mute disabled people
ily disabled people who "make being disabled your entire personality"
ily disabled people who are punk, goth, emo, scene, grunge, metal, vkei, decora and any "wierd" fashion style (especially if you decorate your aids to match you're the coolest)
ily creative disabled people
ily disabled activists
ily disabled people who need a helper
ily disabled people who want to be independent but can't be
ily disabled people who love your independent
ily disabled people who wish they could have a helper
ily disabled people who feel like you're not disabled enough to be valid
ily older disabled people who help younger disabled people
ily young disabled people who help older disabled people
ily overweight disabled people
ily underweight disabled people
ily disabled people trying to lose weight for health
ily disabled people trying to gain weight for health
ily disabled people with invisible disabilities
ily stigmatized disabled people
ily disabled people who don't feel like they fit into any of these phrases
ily disabled people !!
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